Here at King’s College London we host a research advisory group, the Stroke Research Patients and Family Group. This group meets every six weeks and we invite researchers and stroke patients to discuss stroke research. One of our longest standing members has written a short story about the experience of stroke and being a member of this group.
PATIENT INVOLVEMENT: TOO MUCH TO ASK ?
There is an essence driving the human body, some thing that makes it more than the sum of just its physical parts.
However, as the ‘e-world’ has expanded through the 21st century, there has been an ever-growing trend to reduce humans to a cluster of tick boxes. We have been transformed into a software package containing an infinite number of permutations awaiting exploration. The health worker can select the cluster of deficient or corrupted functions, ticking the boxes relevant to the existing problem, and presto! up pops a window on the screen of the e-device, listing actions for resolving the matter: ‘Ah, I’ve assessed that the fault is the result of (blah). I will locate the patch, check for updates. After installing, all will be right again: